To Moms of all kinds out there (yes, of furry kids too).
Happy Mother’s Day
To honour the theme of Mother’s Day (and the time in the evening!) I wanted to share one of my dear friend’s story’s with you. She and I met at playdates when our oldest daughter’s were babies and have both gone on to have boys after – myself in 2007 and Owen, Andrea & Matt’s son, Little bro to Mia, was born in August of 2010. The girls are still little buddies and share playdates with the boys. The kids all love it especially Owen. Owen is sunny and sweet and absolutely special. And, you see Owen is special, he’s one of 200 people worldwide diagnosed with Kleefstra Syndrome , a deletion on his 9th chromosome. This is Owen.
No one can say it better than the Mom, so I have copied and pasted her post on the Facebook group “Help Owen Get To Texas” below as well as the link.
Since she created this group on Friday of last week (May10) there have been several more fundraisers* added on – please take a peak! In addition, Andrea & Matt are in the midst of setting up an account for any cash donations you may wish to give.
Please repost this link and spread the awareness about Kleefstra Syndrome.
A word from Andrea:
He was diagnosed #124 in the world in Nov 2010. He is non-verbal, can only have pureed/thickened liquids, aspiration issues, chronic pneumonia, non-mobile (uses a walker/wheelchair), global developmental delay, heart murmur. The genes he is missing seem to have their parts in most areas of development unfortunately. He is currently at a12-15 month old level and will be 3 in August. He is working so hard in therapy. I have just resigned from my work as a daycare supervisor, to help him full time to get him as far as we can for school in Sept. 2013. He is a ridiculously happy funny kid, they say the personality is part of the syndrome, but I refuse to believe that. I think he is just awesome all on his own.
The weekend of Pct 12 there is a North American meet up of Kleefstra families. That on it’s own is amazing as there are so few of us scattered all over the world, seeing other KS kids period is cool and talking to other parents who understand is something I am so looking forward to. In addition Dr. Kleefstra will come if enough families are going. She is based at a university in the Netherlands and is the only doc researching O’s syndrome, meeting her would be amazing AND he could participate in her research, she also offers advice. She often goes to the meet ups in the UK, but has never been to North America. Texas was picked as the location because there is a special needs amusmant park there.www.morganswonderland.com (All the rides are accessible etc.)
Join the Help Owen Get To Texas facebook group.* myself nor my business, Joy In Your Kitchen(JIYK)/joyskitchen does not endorse or receive renumberation from any of the products nor fundraisers involved.
And now on to the recipes! (This is a food blog after all – right?). Tonight since I got to relax all day for Mother’s Day – I thought I would blog on of both my moms, and my favorite sipping cocktail. The Bloody Caeser – Often imitated never duplicated! So with that – Cheers to all the Mom’s out there!
Joy’s Bloody Ceaser (spicy).A couple of notes here – yes use a Clam Cocktail (Mott’s is the most popular here in Canada – not sure where carries what brands), Clamato juice NOT tomato juice a Bloody Mary – does not a Ceaser make! . Celery Salt in a dish or rimmer
1 lime wedge & juice
1 lemon wedge & juice
2 ice cubes
5 shakes cayenne pepper sauce
7 shakes Worcestershire sauce
6 oz Clam Cocktail – well chilled
1.5 oz vodka of your choice
My secret ingredient (optional – but really just try it!) a splash of kosher pickle juice (yes you read that right – I said pickle juice – any will do really but I like the kosher style the best).
Run lemon (or lime) wedge over rim of glass. Rim the glass in the celery salt. Add 2 ice cubes, the juice of both the lime and lemon, add the rest of the ingredients, ending with the Clamato Juice. enJOY!
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